The Arab-Indian haplotype in sickle cell is a genetic type we see in our tribal communities here in Odisha—it often leads to a milder form of the disease, which is a small blessing. Screening is limited because the mobile testing vans cannot reach our remote villages often, and people fear the stigma. As for hydroxyurea, it is rarely available at our primary health centre, and even when it is, many families cannot afford the regular travel for follow-up. I know this because my own niece has this haplotype, but she still suffers because the medicine is just a name on a doctor's slip in Angul town, far from our reach.
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